What is it really like to live with a debilitating condition that may never go away? In the beginning, its all about survival, just trying to get through the endless testing, trying to find the answer to your problems. It is such a difficult time that you barely notice the months slipping by that you will never get back. You spend most of your time trying to find a treatment that will help, looking for that illusive piece of the jigsaw that has been missing your entire life. You don't stop to think, what if? It doesn't even register on the radar…there must be something, someone else might know more, maybe I can work it out myself? So you loose yourself in finding the answer, switch off from what's happening and focus on the one shred of hope that you have. All the time, tick tock, tick tock, the months go by. Finally you find someone who cares, a special dr or nurse who takes the time to listen and it changes everything….for a while. It gives you comfort, new
Hi Minx,
ReplyDeleteWhat a beautiful person you are. Thanks so much for sharing your story. Keep strong and know that people do care. Gastroparesis is such a difficult condition for people to respect and understand. My daughter has been struggling with recovery for two years now but not as severe as you. I've had some interesting experiences with doctors and I think you are very smart to follow your instincts about who is kind and can help you. Though, they'd never admit it, no doctor knows everything, even if they specialise in it. Find and stick with the great doctors who can help you and never give up :)
Find joy and happiness where ever you can, YOU deserve it. Look after yourself and your beautiful children.
Lots of love, Linda from Australia!