Top 10 Posts

Here are my top ten most popular posts! I hope you like them and find them useful x

  • "What To Do If You Think You Have Gastroparesis" #Part 1

  • "What To Do If You Think You Have Gastroparesis" #Part 2

  • "What To Do If You Think You Have Gastroparesis"#Part 3

I hope you liked them!

If there is anything specific that you would like me to write about, please feel free to email me at helpmeminx@yahoo.co.uk or leave a comment in the box below xxx




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Gastroparesis, EDS & the Final Piece of the Jigsaw Part #3 / Cranio-cervical Instability!

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I know I left Part 2 somewhat in the middle of the consultation, so I'll try and start where I left off and see where it goes. Obviously there are inevitably going to be more "parts" to this series the deeper we go, so bear with me I WILL get it all down on here eventually. To sum up the last post in a few words, the diagnostic term for my neck issues is, Cranio-Cervical Instability. Naturally our next question was, "What can we do about it and what does it mean for the future?" This is where I struggle to explain. When it comes to brain/spinal surgery the decision process is not so cut and dry! So, the only way to actually fix the instability in my head and neck and prevent any further neurological damage would be to fuse my skull and top two vertebrae together using metal rods (permanently immobilising my skull C1 & C2) and remove the excess tissue that is causing the brainstem compression. Obviously this is a very risky procedure and not one...
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What to do if you think you have Gastroparesis #Part 2

Please click here for  #Part 1 So, you went to your GP and the chances are... you came home with a bunch of pills and were told to go back if things didn't improve. This is standard practise and you mustn't feel that this is a brush off in any way. There are several medications that help improve gut motility and nausea so it's highly likely that you will try a few before you find a regime that suits you. Remember: When they say come back.... they mean it. Doctors don't chase their patients and if they don't see you they will presume you are ok. It is best to give any medication a good chance to get into your system so don't expect immediate results. 4 weeks is usually enough time to know if something is working for you or not but some medications can take longer than this. In that time, there are many things that you can do for yourself to help minimise your symptoms. Dietary changes are a must when it comes to gastroparesis, no matter how hard ...
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Gastroparesis, EDS, & the final piece of the jigsaw #Part 2

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Click here for #Part 1 Most of you will already know through my blog, I'm not keen on surgeons ( to put it mildly ) so that key moment when I first meet a new one always feels like a very tense and anxious exchange. Years of plodding through the various health systems has unfortunately made me very cynical so it takes a lot to win me over these days. ... However,  Dr G had a very open and friendly manner about him which was instantly reassuring, we felt like equals from the offset so any tension we had felt beforehand quickly disappeared. He managed to hit my top two priorities on the head in pretty much the first sentence! He explained that he had been very interested in my unusual presentation and was keen to understand more , which is always difficult through email conversation. (not exactly a demanding list but surprisingly hard to find, especially among the surgical fraternity!) Prior to the appointment I had submitted a series of questionnaires including; a CCI quest...
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