I know I left Part 2 somewhat in the middle of the consultation, so I'll try and start where I left off and see where it goes. Obviously there are inevitably going to be more "parts" to this series the deeper we go, so bear with me I WILL get it all down on here eventually. To sum up the last post in a few words, the diagnostic term for my neck issues is, Cranio-Cervical Instability. Naturally our next question was, "What can we do about it and what does it mean for the future?" This is where I struggle to explain. When it comes to brain/spinal surgery the decision process is not so cut and dry! So, the only way to actually fix the instability in my head and neck and prevent any further neurological damage would be to fuse my skull and top two vertebrae together using metal rods (permanently immobilising my skull C1 & C2) and remove the excess tissue that is causing the brainstem compression. Obviously this is a very risky procedure and not one...
Hi Minx,
ReplyDeleteWhat a beautiful person you are. Thanks so much for sharing your story. Keep strong and know that people do care. Gastroparesis is such a difficult condition for people to respect and understand. My daughter has been struggling with recovery for two years now but not as severe as you. I've had some interesting experiences with doctors and I think you are very smart to follow your instincts about who is kind and can help you. Though, they'd never admit it, no doctor knows everything, even if they specialise in it. Find and stick with the great doctors who can help you and never give up :)
Find joy and happiness where ever you can, YOU deserve it. Look after yourself and your beautiful children.
Lots of love, Linda from Australia!