Useful Sites

This page is dedicated to all the really useful websites I have found along my journey, if anyone has any suggestions for this page please place a comment below, Thanks!

 Gastroparesis:


 Gastroparesis & Intestinal Failure Trust (uk charity)

 www.facebook.com/GIFTuk  Gastroparesis & Intestinal Failure Trust Facebook page

www.medscape.com     Provides access to thousands of medical journals...register FREE!

 www.livingwithgp.com  A patient guide to Gastroparesis excellent!

 http://www.nice.org.uk  National Institute of Clinical Excellence Guide to gastroelectrical stimulation

 http://www.medtronic.co.uk Information about gastroparesis and the gastric stimulator





www.gastrotraining.com  If you are medically minded and would like to know more about                                 Gastroenterology.



 Ehlers-Danlos Syndrome:

 www.ednf.org/images/stories/leaflets/soyouthinkyoumighthaveeds.pdf

 A must read guide to all things EDS, help with diagnosing EDS


www.bmj.com/content/342/bmj.c7167.full  A great guide to EDS diagnosis for Drs                                                                        


www.dinet.org                  Information on POTS Postural Orthostatic Tachycardia                                        
                                         Syndrome

 www.potsuk.org                  Info on postural orthostatic tachycardia syndrome


www.hypermobility.org      Information on EDS supported by professor Rodney                                            
                                       Grahame


http://www.genetests.org/servlet/access ... tails.html      Information on EDS


www.ednf.org                      Ehlers-Danlos National Foundation
.


www.ehlersdanlosnetwork.org  Info on Ehlers-Danlos Syndrome

 Forums and Groups:

 www.inspire.com   Patient forum where you can sign up to talk about ANY health issue.


www.ehlers-danlos.org        All the latest info and chat forums for patients with Ehlers-                                  
                                         Danlos syndrome

 www.facebook.com/groups/GIFTuk Gastroparesis & Intestinal Failure Trust Support Group
My FB Page x           Living with Gastroparesis and EDS. A place to talk freely and share information and experiences                                 


 http://www.disabilitysanctuary.com


  

Comments

  1. DawnEliseEvans14 September 2011 at 16:12

    I stumbled upon your blog and I commend you for your computer literacy, your valiant attitude and your attempt to reach out to others. I have a blog called, too. A New Dawn (http://dawnings-anewdawn.blogspot.com/) you might want to check out today's blog. We share more than an interest in writing! Maybe you'll laugh. Thanks again. I'll start following you. Dawn

    ReplyDelete

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