What is it really like to live with a debilitating condition that may never go away? In the beginning, its all about survival, just trying to get through the endless testing, trying to find the answer to your problems. It is such a difficult time that you barely notice the months slipping by that you will never get back. You spend most of your time trying to find a treatment that will help, looking for that illusive piece of the jigsaw that has been missing your entire life. You don't stop to think, what if? It doesn't even register on the radar…there must be something, someone else might know more, maybe I can work it out myself? So you loose yourself in finding the answer, switch off from what's happening and focus on the one shred of hope that you have. All the time, tick tock, tick tock, the months go by. Finally you find someone who cares, a special dr or nurse who takes the time to listen and it changes everything….for a while. It gives you comfort, new...
There are heros and there are warriors Nat. In my opinion you are both. You are a "hero" to so many of us suffering with these diseases that make us a slave to pain and chained to our beds for days. But you Minx, you post blogs and websites with a wealth of information of what to do and where to get help and how to cope. And you know that just being there for so many who are so frightened of the unknown and are looking for answers no matter how big or small is a big thing when your alone and afraid. You have the ability to turn that fear into positive thoughts and research and above all "knowledge" Knowledge is power and without it we are lost.
ReplyDeleteYou are a "warrior" because you fight these diseases with the courage of a soldier going into battle with only the positive power of your mind. You continue to amaze me with your strength and courage and the ability to take on the most horrible of pain while holding out that ever helping hand to someone else. Your unselfishness makes you the most beautiful person I know. Rest your body and mind now and let us hold you up for awhile Lovie. My heart is heavy for you. XXX Hugs, O
Ok...now I'm crying x you have such a beautiful way with words. Thank you for making me feel worth something right now xxxxxxx
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