I know I left Part 2 somewhat in the middle of the consultation, so I'll try and start where I left off and see where it goes. Obviously there are inevitably going to be more "parts" to this series the deeper we go, so bear with me I WILL get it all down on here eventually. To sum up the last post in a few words, the diagnostic term for my neck issues is, Cranio-Cervical Instability. Naturally our next question was, "What can we do about it and what does it mean for the future?" This is where I struggle to explain. When it comes to brain/spinal surgery the decision process is not so cut and dry! So, the only way to actually fix the instability in my head and neck and prevent any further neurological damage would be to fuse my skull and top two vertebrae together using metal rods (permanently immobilising my skull C1 & C2) and remove the excess tissue that is causing the brainstem compression. Obviously this is a very risky procedure and not one...
There are heros and there are warriors Nat. In my opinion you are both. You are a "hero" to so many of us suffering with these diseases that make us a slave to pain and chained to our beds for days. But you Minx, you post blogs and websites with a wealth of information of what to do and where to get help and how to cope. And you know that just being there for so many who are so frightened of the unknown and are looking for answers no matter how big or small is a big thing when your alone and afraid. You have the ability to turn that fear into positive thoughts and research and above all "knowledge" Knowledge is power and without it we are lost.
ReplyDeleteYou are a "warrior" because you fight these diseases with the courage of a soldier going into battle with only the positive power of your mind. You continue to amaze me with your strength and courage and the ability to take on the most horrible of pain while holding out that ever helping hand to someone else. Your unselfishness makes you the most beautiful person I know. Rest your body and mind now and let us hold you up for awhile Lovie. My heart is heavy for you. XXX Hugs, O
Ok...now I'm crying x you have such a beautiful way with words. Thank you for making me feel worth something right now xxxxxxx
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