No water!

Wouldn't it be nice if the systems that are put in place actually work! I have had some major issues with the company that provide all the kit for my feeding tube. I was supposed to get a delivery of sterile water on Tuesday this week. It didn't arrive but I had enough to keep me going and the dietitian ordered it again for me on Thursday when she came to visit. They promised to have it to me by Friday....it didn't arrive. So I rang them myself and they apologised and told me they would send it on express courier and it would be here by 10:30 on Saturday morning. Yes you guessed...it didn't arrive! I don't have the 24hr number to ring and they don't deliver on sundays so it's going to have to wait till Monday for me to sort it out. In the mean time I'm left with the problem of no water to irrigate the tube with. I had to trek out to the chemist to ask them if they had any but they don't stock it. They suggested I go to the little minor injuries unit at the local hospital and ask them. So, off I went, with my pump (I still don't have a backpack for it!) and two kids, to find some water. They did have some there which was a huge relief but its in IV (drip) bags, so I really did look like a hospital escapee when I walked out of the building with my drip stand, a tube in my face and two bags of IV fluid under my arm! I was just missing the hospital gown with the split up the back lol. The kids found it very amusing!

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