G.I.F.T: Do you write poems?: Hi everyone! After receiving great feedback on facebook about poems, I thought it would be a great idea to get everyone to send in their ...
I know I left Part 2 somewhat in the middle of the consultation, so I'll try and start where I left off and see where it goes. Obviously there are inevitably going to be more "parts" to this series the deeper we go, so bear with me I WILL get it all down on here eventually. To sum up the last post in a few words, the diagnostic term for my neck issues is, Cranio-Cervical Instability. Naturally our next question was, "What can we do about it and what does it mean for the future?" This is where I struggle to explain. When it comes to brain/spinal surgery the decision process is not so cut and dry! So, the only way to actually fix the instability in my head and neck and prevent any further neurological damage would be to fuse my skull and top two vertebrae together using metal rods (permanently immobilising my skull C1 & C2) and remove the excess tissue that is causing the brainstem compression. Obviously this is a very risky procedure and not one...
What is it really like to live with a debilitating condition that may never go away? In the beginning, its all about survival, just trying to get through the endless testing, trying to find the answer to your problems. It is such a difficult time that you barely notice the months slipping by that you will never get back. You spend most of your time trying to find a treatment that will help, looking for that illusive piece of the jigsaw that has been missing your entire life. You don't stop to think, what if? It doesn't even register on the radar…there must be something, someone else might know more, maybe I can work it out myself? So you loose yourself in finding the answer, switch off from what's happening and focus on the one shred of hope that you have. All the time, tick tock, tick tock, the months go by. Finally you find someone who cares, a special dr or nurse who takes the time to listen and it changes everything….for a while. It gives you comfort, new...
Please click here for #Part 1 So, you went to your GP and the chances are... you came home with a bunch of pills and were told to go back if things didn't improve. This is standard practise and you mustn't feel that this is a brush off in any way. There are several medications that help improve gut motility and nausea so it's highly likely that you will try a few before you find a regime that suits you. Remember: When they say come back.... they mean it. Doctors don't chase their patients and if they don't see you they will presume you are ok. It is best to give any medication a good chance to get into your system so don't expect immediate results. 4 weeks is usually enough time to know if something is working for you or not but some medications can take longer than this. In that time, there are many things that you can do for yourself to help minimise your symptoms. Dietary changes are a must when it comes to gastroparesis, no matter how hard ...
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