I'm back!

Finally I feel up to sitting at the computer...just!

I will post some journal entries in my diary section that I hand wrote in hospital if you would like the full run down. For now I will just bring you up to speed with where I'm at today.

I had my surgery on the 21st of October. All went well and I'm now working hard to get myself well again. I have had a few issues with the feeding regime already but I expected it to be a bumpy ride. After almost 2 years of eating nothing, my body is a little overwhelmed by the new set up. I'm sure that it will all settle down eventually but for now it's like one step forward two steps back. I left hospital on a feed rate of 50mls per hour over 24 hours. This was fine for all of one day but I soon started to feel unwell once I got home. I think it was all just a little too fast for my slow digestive system. I was in so much pain that I had to switch it off all together. After a full night's rest from feeding I  set it going again in the morning at the same speed...determined not to let it beat me! That didn't go too well either...it's all going but it ain't coming out if you get my drift. So after much consideration I had a few hours rest from it and then started it up at a slower pace of 30ml/hr. This is nowhere near enough for me to gain weight on but it's better than nothing at all. So, back to the doctors for some Movicol, which I can now put through my jejunostomy tube (I couldn't take it before because I am unable to drink it). I'm hoping this will help to move things along ASAP! For now though I feel pretty low and very nauseous but hey what's new! I'm psyching myself up for my appointment with the dietitian this afternoon but for now I'm going back to bed.

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